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Guest Post: Our Unique Smile

perfilAgosto2.jpgRo Vitale is a singer and songwriter from Buenos Aires, Argentina. She was the keynote speaker at the Spanish Program at the Annual OCD Conference in Los Angeles last month, where she stole the show with her honesty, openness, and amazing singing voice.  Today, she writes a guest post for our blog about her experiences at the conference, but also about the bigger picture of what it’s like to live with a diagnosis of OCD.  Read the post below, and be sure to download her song My Inspiration on iTunes or Amazon, of which she is donating the proceeds to the IOCDF.
 
It’s been just a couple of weeks since I had the chance to participate in the 21st Annual OCD Conference in Los Angeles, CA. Just as pain’s effects endure over time, as aftershocks occur in everyday conversations (with ourselves or others), the same thing happens with wonderful experiences. Today I won’t talk about OCD, even though it’s clear that’s all we talked about during the Conference. Instead, I will deliberately attempt to generalize my vision.
 
I think about the surprising elasticity of certain human characteristics when properly stimulated. I have seen how often our difficulties, shortcomings and dysfunctions become our prisons and monopolize our will, to the point of shaping our identity. And for those of us who hold the symbolic certificate of an unquestionable diagnosis, we seem to walk through life dressed in a suit of our pathology, tolerating self and social stigma, slowly putting away the cards of our dreams as if they had no place at the game table. And I’m saying that because I often see us manipulating reality with our legitimate “I can’ts”, gently stroking the back of our symptoms, almost like a pet, justifying our frustrations over and over again. Oh, yes, I should have said our legitimate frustrations.
 
But even though it’s our right to be understood and respected for our difficulties, our torment and struggles, there is another great truth on the opposite side of the coin. A truth that states that we are NOT our difficulties, our pathology or our disorder. We are NOT our symptoms and we certainly are NOT our dysfunctions. All that is what HAPPENS to us, but it is not our identity. If even a concept as foundational as identity has stretchability, maybe it’s time to look at ourselves in a cleaner mirror.
 
Romina and her mother at the Conference.

Romina and her mother at the OCD Conference in LA.

Throughout the conference, there were no OCDs versus non-OCDs, ‘healthy’ professionals versus ‘troubled’ attendants. There were no scholars versus ignorants, problem-solvers versus problem-havers, treating therapists versus treated patients, supporters versus supported. Instead, there was a group of individuals, homogenized by a shared wish; a group of people deeply touched, moved and motivated by the same vision, inspired by hope. Above all, a group of individuals being heard and seen through their unique creative identity. No diagnosis would blur or cloud any I.D. picture (if I may use this metaphor). No symptom was greater than the shyest smile. This was probably one of the things that caught my attention the most. There were more than enough reasons to rightly establish a hierarchy of positions and roles. None of that happened. I remember having discussed this very same thing with Dr. Jeff Szymanski, IOCDF’s executive director, Carly Bourne, director of communications and my dear Stephanie Cogen at a meeting before coming back to Buenos Aires. I’m still so impressed and inspired by their wonderful work and their vision. I’m still processing everything I learned from them. The conference itself has certainly been a life-changing experience.

My commitment to raising awareness about OCD is much broader than the (very important) task of conveying information on the specific appearance of OCD symptoms (which might encourage sufferers to seek help), or the necessary mission of fighting stigma and social exclusion, or the fundamental goal of expanding and facilitating access to appropriate treatment, or spreading the main message that there is hope and we can get better. My commitment is much broader, because I strongly believe that we must dis-identify ourselves from the difficulty, the symptoms and ultimately the disorder itself, to find ourselves in our dreams, our voice and our creativity.
 
The more I talk about OCD, the less OCD will speak for me.
 
We seem to keep listening to the same old official voice of our failures and difficulties. Maybe it’s time to start hearing the sweet sound of another ringing bell: the one that makes us unique; the beautiful sound of our own voice, the kind, creative and sounding lines that we are made of. Even if it’s hard. Even if it hurts or annoys us at first. If we just let it, our willpower will work its magic.
 
Maybe it’s time to look in the opposite direction of what holds us back. Maybe it’s time to acknowledge our elastic strings, our own eyes, our creative freedom, our kindness, our unique smile.
 
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The 21st Annual OCD Conference in LA: A Look Back

Just two weeks ago, the 21st Annual OCD Conference was getting underway in Los Angeles.  Now we are back in the office and adjusting to reality again. All of the IOCDF staff had an amazing time meeting all of you, hearing your stories, and working to make this a conference you would never forget.  On today’s blog, IOCDF executive director, Jeff Szymanski, PhD, reflects on the highlights of this year’s conference, and takes a look at what attendees had to say about the event on Twitter and blogs around the web. – Editor

As the executive director of the IOCDF, boy do I love to hear that! My friend Sean O’Connell asks me each time we talk, “What is the most meaningful thing you’ve done today?” At the conference, every minute of each day feels meaningful. Shala Nicely sums up my hope for every conference goer, every year in a recent blog post on her Aha! Moments blog:

When I attended my first International OCD Foundation conference in 2010, the whole thing was one huge “Aha!” In session after session, I learned one mind-blowing thing after another about OCD and its treatment, and the fact that as a person with OCD, I did NOT have to suffer. (Read the full post here.)

Jeff-sunglassesSo, I donned my LA conference sunglasses and was prepared myself this year to again be blown away by the richness of the OCD and related disorders community.

K Oakley shared with us her experience of being a parent at the conference:

I again was amazed at the ease people had sharing their journeys of struggle with this disorder.  It definitely is a safe environment where your worst days and fears can be shared without fear of judgment.  We met a young man on the shuttle from the airport to the hotel that was attending the conference.  My not so shy son struck up a conversation right away, and we immediately became “friends.”  It was great seeing him through out the conference, giving each other updates as we went. (Read the full post here.)

As many of you know, the Annual OCD Conference is for individuals with OCD and related disorders, family members and supporters, and professionals. When I ask people about their favorite part of the conference they inevitably remark about how everyone affected by OCD and related disorders comes together on an even playing field to be generous, compassionate and courageous. Our invited Plenary speaker, Dr. Todd Kashdan, had never been to one of our conferences before. Todd is hard to impress, but was immediately struck by the tone of our conference:

But, here is what really got me about this year’s conference: the number of people who returned to the conference not just for a sense of community and an opportunity to learn something new, but to give back. Our 2014 Keynote Speaker, Ethan Smith, was a perfect example of this. The message of his keynote address hit exactly the right tone. He wasn’t up there to just tell his story. He was there to tell his story so that it might make a difference in someone else’s life. His courage and vulnerability during his Keynote was awe-inspiring and we can’t wait to get it posted on our website for even more people to see and be affected by it. Thank you, Ethan!

And we have continued to expand our reach. I was very proud to be involved in an organization that goes the extra step to reach out to underserved populations with the first, full day conference program given completely in Spanish on Saturday, July 19th. A shout out to our Keynote Speaker for this conference, Romina Vitale who wrote a song, My Inspiration, dedicated to the conference, as well as delivering a powerful Keynote address.

Saturday was also the night of our Saturday Night Social, where the entire conference community comes together for dinner, dancing, and more importantly, having fun. IOCDF guest blogger, Alison Dotson, wrote this on her post about the social…

On Saturday night we got dressed up for dinner and the awards ceremony. First up the IOCDF honored advocate extraordinaire Margaret Sisson for her role in spreading awareness in Georgia…. Next up was Minnesota-native comedian Maria Bamford, who received the first annual Illumination Award. Bamford uses her comedy circuit to spread awareness about OCD, telling side-splitting–and sometimes heartbreaking–stories about her life with the disorder. She sang a hilarious little ditty she wrote about her obsessions and compulsions, which had me cracking up every time I thought of it the rest of the night.

Since I’ve loved Bamford for years, and because she’s a fellow Minnesota native, I quietly approached her. I told her I’d hoped to see her show last fall in Minneapolis but that I’d already spent money on a David Sedaris appearance. She nodded and said, “You have got to plan your comedy show budget very carefully.” When Maria went to the dance floor for the first song of the night, IOCDF Communications Director Carly Bourne said, “Alison, go dance with her!” Ack! Let me tell you — I do not dance. But I danced on Saturday! What a blast. I’m sure there’s photographic evidence that I may already be regretting… (Read the full post here.)

dancing-with-maria2

The photographic evidence.

For now, however, conference season is over, and Chrissie Hodges summed it up well:

I sit here tonight in front of my computer and I miss my friends from the conference. I miss the unspoken acceptance. I miss the excitement of discovery and the stories of triumph over tragedy. I miss the conversations that come naturally because of a common denominator between 1500 people. And I miss that feeling of being among “my type of people.”

I am the luckiest person in the world to have found the IOCDF and to have been blessed enough to attend a conference that has positively changed countless lives for so many years, including my own. Yes, there is sadness…but it is lined with optimism and confidence that the last few days of my life have changed me positively…and just like the conference time warp happened so quickly–before I know it, I will be right back on a plane heading to Boston for the IOCDF Conference 2015. (Read the full post here.)

I’ll see many of you in Boston. I will be the blur moving through the crowds.

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Guest Post: Report from the Annual OCD Conference

Originally posted on Free Spirit Publishing Blog:

By Alison Dotson, author ofBeing Me with OCD

Ali Dotson, FSP authorThis past weekend, July 17–20, I fulfilled a dream I’ve had for several years now: I attended the 21st Annual OCD Conference, held by the International OCD Foundation (IOCDF). This year it was in Los Angeles (ooh la la!), but last year it was in Atlanta and next year it will be in Boston. As much fun as it was to travel, it’d be great if the conference ended up here in Minneapolis one year, too!

The very first OCD Conference was held in a small hotel in Bloomington, Minnesota, and only about fifty people attended. This year there were 1,345 attendees! The conference has grown in leaps and bounds and become a truly international experience.

Kids-Parade at 2014 OCD conf by Roberto Farren

The Kids’ Parade at the conference was joyful. Photo courtesy of Roberto Farren.

The energy there was palpable. I was diagnosed with OCD about…

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International OCD Conference Annual OCD Conference - 2014 - Los Angeles